Wednesday, December 1, 2010
Update on Emily
Her survival depends upon a transplant. Once she is six weeks old she will registered with an organization similar to UNOS. To become a candidate for transplant she will have to 20 plus lbs or so, so surgery is in the future. There has been some discussion of using Boston Children Intestine and Multivisceral Transplant Program.
In essence Emily has severe short bowel syndrome. She lost all of her bowels, with the exception of 9cm of her small intestines and small portion of her large intestine (sigmoid colon).
The majors issues over the next two years or so are nutrition and infection. It is a high wire act. She will be in NICU for 6-8 months, maybe less maybe more. It will be along stretch. Say some prayers for Emily and family